Sunday, July 5, 2015

An Update


We had our appointment with the high risk OB last week.  He gave Arabella Grace less than a 10% chance of survival after delivery.  If I'm honest, everything about how he delivered the results pointed more towards a 0% chance in his mind...but of course stated that he doesn't deal in absolutes.

What he confirmed from the ultrasound is that there is actually no fluid around her, which presents multiple problems for her lungs.  Mostly...there is just no way for them to develop.  He showed us where there are spots on her kidneys...what he believes to be cysts.  And he confirmed the first diagnosis from last month...thickened heart walls & fluid around the right side of the heart.  She is also about 3 weeks behind in size.

In all my life, I've never been so heart broken.  I have prayed & longed for this little life for such a long time...the fact that she could be taken from me makes it hard to breathe.

With that being said, I'm not giving up on her.  I know medically the statistics are grim.  But I believe in an all powerful God of healing & hope, who truly has the final decision.  I have to trust in Him, and His plan.  Without that, this would be even more unbearable than it already is.  There is a song that says "I will praise you in this storm", and that is where I am at.  Sometimes my prayers only come in the form of tears, but my God knows my heart.

Please keep us in your prayers.  This is a really scary & hard time for all of us...especially me.

Wednesday, June 17, 2015

We need your prayers.

**Photos by Lindsay Kaye Photography.**

We had a genetics test done when I was 12 weeks along, and I've known for 7 weeks that we are having a sweet little baby girl.  I've been on cloud 9.  Purchasing the softest, girliest, sweetest items to dress her up in once she made her arrival in October.  We've named her Arabella Grace.  We call her Ellie when we talk about her.  We've only told our parents & some of our closest friends that she is a girl, because I really wanted to announce it with photos.

What I didn't know is that at the same time I would be telling you we are having a little girl...I would also be telling you that everything is uncertain at this point.  Our genetics test came back with perfect results.  But my cloud 9 came crashing down this past week when we went in for our 20 week ultrasound & received very little good news.

What we know is that there is little to no amniotic fluid around her, which means her lungs cannot develop properly.  They also examined the placenta & cord, and while there is a flow between them...she is not getting enough nutrients & blood.  Her heart is having to work to hard trying to get what she can, causing the thickening of her heart walls & fluid around her heart.  Along with all of this...most likely because of all this...she is almost two weeks behind in size.  The doctor said something like 1 percentile.  I hate percentiles.

The good news that we have is that she is alive.  Her heart rate is strong.  Her brain & spinal cord look good.  And although hard for them to see, she does have kidneys and they appear to be working.

The next few weeks are a waiting game.  Waiting until I am 24 weeks along.  Praying & hoping & pleading that she be a little fighter & that her heart keeps beating.  On June 30th I have an appointment with a high risk OB, where I am scheduled for a detailed ultrasound & an echocardiogram on her heart.  This is when they will tell us what our options are.  This is where we will find out if her survival is possible after delivery, and when that will happen.  It is when we might have consultations with the NICU and pediatric cardiologist.  Until then...we wait.  Three weeks.  Time has never felt so slow before.

While trying to remain hopeful & positive...I am hurting.  I am broken.  I am scared.  I feel helpless.  There is nothing I can do to fix this.  We are at an intersection of utter desperation & total reliance on God.  The only thing I can really do is pray for her.  Talk to her & cheer her on.  And pray some more.

If you could, please send up some prayers of healing & health for our little girl.  For strength, wisdom & peace for us.  We really need them right now.

I need something too.  Please don't avoid me.  I know that this is a hard situation to know what to say...but I'm not easily offended.  I promise.  I know that 99% of the time people mean well, even if something doesn't come out quite right.  Mostly...I just need to feel supported & loved right now.

You can call me.  Email me.   Text me.  Message me on Facebook.  I might not reply right away...but I will reply.

I also wanted to say thank you to Lindsay from Lindsay Kaye Photography for taking our photos & being so supportive as we stumble along this scary path.  We really appreciate it. 

Tuesday, June 2, 2015

LID June Release - Day 3


Hey there, blog friends!  Welcome to day 3 sharing projects using some new stamps & dies from Lil' Inker Designs!!  Today is our final day of inspiration, and I'm sure it will be a treat!

I've gone super clean & simple with my card today, and focused on the super cute new coffee themed stamp set!
 I think this sentiment is so cute, and it really totally fits me!  Even though I drink decaf right now...I'm a bit of a bear in the morning until I get to make my white chocolate mocha or my chai tea latte.  :)

LID Supplies used on this card:




Be sure to check out what the rest of the designers have created for today!

LID Blog http://www.shoplilinker.blogspot.com/
Amy Kolling http://stamp-n-paradise.blogspot.com/
Karen Baker http://thebalddragonfly.blogspot.com/
Maureen Merritt http://www.mamamostamps.com/
Lisa Henke http://mylittlecreativeescape.blogspot.com/
Chrissy Larson http://chrissycards.blogspot.com/
Amy Tsuruta (Guest) http://tsurutadesigns.blogspot.com/
Sarah Jay http://www.criminalgrace.com/
Heather Hoffman http://housesbuiltofcards.blogspot.com
Lea Lawson http://www.lealawsoncreates.com/
Laura Williams http://lauralooloo.blogspot.com/
Jennifer Carter http://jensinkspot.blogspot.com/
Link to Store http://lilinkerdesigns.com/#_a_llawson

I hope that you have a wonderful Wednesday!!  Thanks for checking out my latest projects this week! 

Until later,
~L.

If you would like to purchase any of the newly released items this month, feel free to click on the links below.  I have included everything that is new for your convenience! 
 

Monday, June 1, 2015

LID June Release - Day 2


Hey there, blog friends!  Welcome to day 2 sharing projects using some new stamps & dies from Lil' Inker Designs!!  Yesterday was the start of lots of inspiring projects, and today is going to be no different!

Today I've created another baby card, but this time for a baby boy!  And I've also created a really fun graduation card.  Up first is the baby card!
I created a super fun shaker card using the new alphabet cover plate...I think it turned out super cute!  How fun would this be to give at a baby shower...and it could easily be switched out for a girl, or gender neutral!

LID Supplies used on this card:




Up next is the graduation card!
This is definitely geared more towards a girl, but you could easily make it more masculine by just changing the colors!

LID Supplies used on this card:


Be sure to check out what the rest of the designers have created for today!

LID Blog http://www.shoplilinker.blogspot.com/
Jennifer Carter http://jensinkspot.blogspot.com/
Lisa Henke http://mylittlecreativeescape.blogspot.com/
Karen Baker http://thebalddragonfly.blogspot.com/
Sarah Jay http://www.criminalgrace.com/
Lea Lawson http://www.lealawsoncreates.com/
Chrissy Larson http://chrissycards.blogspot.com/
Laura Williams http://lauralooloo.blogspot.com/
Amy Kolling http://stamp-n-paradise.blogspot.com/
Amy Tsuruta (Guest) http://tsurutadesigns.blogspot.com/
Heather Hoffman http://housesbuiltofcards.blogspot.com
Maureen Merritt http://www.mamamostamps.com/
Link to Store http://lilinkerdesigns.com/#_a_llawson

I hope that you have a great Tuesday!  Have fun hopping along!

Until later,
~L.

If you would like to purchase any of the newly released items this month, feel free to click on the links below.  I have included everything that is new for your convenience!